Mother still trying to raise thousands for son’s treatment
Tanya Best is at her wit’s end.
At the end of July she was scheduled to take her son, 11-month-old Daniel, to the New York-based Long Island Jewish Hospital to undergo potentially life-saving tests. She never made the trip.
Tanya was not able to raise the more than $40,000 needed to cover the medical costs.
“I need help. I have no idea what to do.
“I am still trying to raise the funds to be able to travel. Not having insurance anymore, the funds are very hard to attain at the moment. I’ve been walking with letters, sending out emails, approaching businesses, individuals, pretty much anybody that would listen to me about Daniel, I have been talking to to see if I can get help,” she told Barbados TODAY.
Doctors suspect that baby Daniel, who has been hospitalized repeatedly since he was three months old, has a condition known as cystic fibrosis.
Cystic fibrosis is a rare, life-threatening disorder that causes mucous to build up in the body resulting in severe damage to the lungs and digestive system.
It can result in frequent lung infections, and it affects the ability to breathe and digest food properly.
A letter issued by Daniel’s doctor, Dr Gillian Birchwood of Rockley Pediatric Clinic confirms the child’s serious medical condition and stressed that “rapid diagnosis and treatment are essential for a good outcome”.
Birchwood further pointed out that the treatment was not available here.
“Due to the rarity of the condition, the specialists and specialized tests needed are not available in Barbados. Daniel has been referred urgently for further management in the United States.”
The delay has proven costly for Best who was forced to give up her job to care for her sick son.
Daniel’s condition has since deteriorated.
“Since then I have had to take him back to the doctor because he can’t digest foods. It’s getting worst. He is on a strict diet – special milk and soft foods. Nothing is staying in so the medication was increased until we can get better treatment for him.”
In addition, Daniel’s medical costs have increased.
Since Best lost her first appointment, the QEH Social Work Department has been working to secure help for Daniel from another US medical facility, the New York Presbyterian Hospital.
A quote provided by that hospital shows the medical treatment will cost $US51,640.
Best, who lost her insurance coverage after the company discontinued the plan last month, has only been able to raise $11, 000 following contributions from the Cystic Fibrosis Foundation of Barbados, Chefette, members of the public and through her fundraising efforts.
“I have submitted Daniel’s case to the Sandy Lane Charitable Trust but I haven’t heard anything as yet. Every charity that deals with children I have called. Some people say they don’t deal with cases like Daniel. I have spoken to some businesses that said they don’t deal with individuals, they deal with organizations. I have been reaching out for help, but the help is not coming. But I won’t give up.
“I am having a fundraiser on August 22nd. Daniel celebrates his first birthday next week Wednesday so I am going to do a fish fry next Saturday. It will be held at the Head Start Nursery School, 9th Avenue Belleville. There is no entrance fee, but there will be lots of things on sale [and] activities for the children. You can come and make a donation.”
Contributions can also be made to Toyriffic in Sheraton Centre and at Scotiabank, the Broad Street branch, Account # 1010356.
“My biggest birthday wish for Daniel is that somebody will hear his story and step forward to help.”